●The home of the patient AI movement
Patients already use AI.
Patient-directed. AI-assisted.
Millions use AI to understand a diagnosis, read a test result, or get an answer no one else will give them. No one has properly studied it. We are building the first real map of who uses AI for their health, how, and to what effect — and the tools to help patients do it well.
01 · Start where you areThree ways in
Whoever you are, there's a door here for you.
For patients & caregivers
Get help with a health question now
Ready-made messages you copy, fill in, and send to a free AI — with the follow-up questions that keep you safe. In English and Spanish.
Start here →For researchers & funders
See the science we're building
The map of how patients actually use AI, its instruments, and the public methods behind every analysis — open and checkable.
The Map →For builders
See what patients are building
A daily-rebuilt register of the software patients write for themselves, plus a daily scan of the field as it moves.
Enter the Radar → 02 · Who we serveAgency for all, starting with those the system fails
For anyone who wants to understand their own health.
For anyone who wants more say over their care, anyone unsatisfied with the answers they've been given, anyone who simply wants to understand their own body — and first, for the people the health system fails:
Geography
No clinic within reach.
Understand your situation before you spend a day getting to care.
Cost & coverage
No insurance, or insurance that keeps saying no.
Read the denial, and learn how people turn a "no" into a "yes."
Scarcity
A waitlist measured in months.
Get answers you can act on while you wait.
Knowledge gaps
A rare disease no local clinician has seen.
Work at the depth your case actually needs.
Disbelief
Symptoms dismissed, year after year.
Put your history into words that get taken seriously.
Exclusion
A language no one at the desk speaks.
Ask, and understand the answer, in your own language.
03 · What we're buildingThe science
The first real map of how patients use AI.
No one has properly studied what patients do with AI. The academic record is thin, slow, and built mostly on paid strangers role-playing patients in labs — outdated before it prints.
We're building the alternative: an open, living science of real users and real uses. The instruments below are the first few. Mapping the whole territory means building many more — and that build-out is the work.
The observatory
The Radar
A forensic register of software patients build for themselves, rebuilt every morning. The raw evidence of what patients actually do, in code.
radar.patientsuse.ai →The casebook
The Casebook
Every paper run through our instruments, assessed and on the record. The claims made about patients, weighed as carefully as what patients do.
Browse the assessments →The record
The Daily Scan
What happens each day where patients and AI meet: tools, research, policy, fights. The longitudinal record of a field in motion.
Read the latest scan →The method
The Standard & Frameworks
Six named, public instruments for measuring patient AI use and auditing the literature about it. The methodology the existing science lacks.
See the frameworks → 04 · TractionIt already ships
NNN+ Patient-built repositories catalogued in the Radar Observed, not surveyed
Daily The Radar and Scan rebuilt every morning Live cadence
6 Published evaluation frameworks & instruments Open methods
2 Languages live, more in preparation Reach
05 · The missionEducate · Advocate · Research
Educate. Advocate. Research.
PatientsUseAI is a lean, startup nonprofit with one mission: to secure every patient's right to direct their own health with AI — agency for all, starting with those the system fails. In these early days of AI, we pursue it as one inseparable effort, and your support builds each part.
- Educate. Teach any patient to use AI on their own health with judgment — the free Start guides today, the full Practice curriculum next, in every language that needs it.
- Advocate. Defend the right of patients to direct their own health: push back on the reflex to gatekeep, and put patients in every room where patient-facing AI is designed, judged, and governed.
- Research. Build the science no one else is — the instruments and the map of how patients use AI, including the hardest question of all: what it does to their health.
All three kept independent of the institutional and commercial interests the work exists to scrutinize — built on thirty years of patient-community work, and meant for many more hands than one.
06 · JoinThe movement has a name
The movement has a name. Use it.
#PatientsUseAI
Share what you build, what you learn, and what AI helped you understand. Every honest account makes the next patient's path shorter.